My goal over the Christmas holidays was to cook, create and add to Colton’s recipe repertoire. So I spent quite a while researching recipes. Colton’s wish for the holidays was to be able to make real sugar cookies. So I searched and searched and found the pinnacle of Gluten Free cookie recipes. So I made a batch, substituting Xylitol for the sugar, and Cole loved them! Even John and Cassidy could not stay out of them. I mean they really were yummy. I think I made 2 full batches of these bad boys and the family ate them the entire holiday.
As the holiday ended and we were all a little bummed that our vacation was over, I was also noticing that Colton was getting very foggy. He was more glassy-eyed than normal and it was hard to get his attention. I knew something was up and that something we had given him had to be causing him to slip back to “the fog”. We had a doctor appt with Dr. Von Bergen right after the holiday and, as always, I brought in my grocery bag of new items for him to test Colton on. I threw one of the sugar cookies in just to make sure we were good to go, believing the whole time they were find. The first thing he did was to test the sugar cookie and he looked up and said “this is absolutely not good for him”. Cole whipped around and looked at me like “MOMMY!!!!” I felt horrible. In his mind I know what I’m doing with all this. But in reality I am learning as I go and unfortunately this sweet kid has had to endure the ups and downs of this diet based on what I give him; he in essence is my guinea pig. The frustrating part is that every ingredient in those cookies was Gluten Free. What this showcased was that even though a product says Gluten Free, it does NOT mean it will be safe for Colton. Every child with these kinds of sensitivities is different, like a thumbprint. So now prior to Colton eating anything, we will be taking it in to his doctor to be tested on him. This is the only way, at this early stage of his diet, to really know that what he is taking in and we keep him 100% safe from toxins going to his brain.
Along with those dang cookies, he also had some sugar free ice cream at a relative’s house & ate a meal at a local restaurant that had a “Gluten Free Menu”. After both of these he had negative side effects. I’m guessing the restaurant food most likely had cross-contaminants, and what I found out about the ice cream was that it was loaded with artificial colors, yellow 4 & yellow 8. He was foggy after the meal and had a full blown panic attack after the ice cream. He had never had anything like this and I was at a loss for what to do. It was honestly very scary and my heart broke for him. I called his doc immediately and he had me bring him in right then. He checked him quickly and told me he had a toxicity in his system from something he ate. I was so frustrated with myself that he suffered because of decisions I made. He does not deserve this. What I would give to trade places with him.
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